Blond woman smiling

Transparency

Sobi adheres to the ABPI and IPHA Codes of Practice in the UK and Ireland, and is committed to transparency by making public all funding and support by Sobi and healthcare professionals, healthcare organisations and patient organisations in the UK & Ireland.

Sobi has made the following payments, sponsorships and donations:

Payments made in 2015

 
Payments to patient organisations
 

UK Value

Cambridge Rare Disease Network (Donation)

£1,559

CLIMB National Information Centre for Metabolic Disease (Meeting sponsorship) £1,000
Genetic Alliance UK (Conference sponsorship and Patient support project)

£2,500


Leeds Teaching Hospital Charitable Fund (Meeting sponsorship)
£350
The British Dupuytrens Society (Corporate sponsorship) £31,600
The Haemophilia Society (Patient support survey, corporate sponsorship and young people's project)  £90,650
Total £127,659
   
Ireland  
Arthritis Ireland (Patient support project)

€1,000

Irish Haemophilia Society Ltd (Meeting sponsorship)

€6,574

Total

€7,574



Reference: NP-0698
Date of Preparation: 30th March 2015

Payments made in 2014

Fees paid to healthcare practitioners as consultants
£22400
Number of recipients 23

Sponsorship of individuals to third party meetings – registration fees, travel and accommodation
Total amount = £8538
Number of recipients = 22
Number of attendances = 25

Medical Education Grants and Services – Donations, grants and benefits in kind
Yorkhill Hospital Glasgow £2209
Evelina Children’s Hospital £2209
University Hospital of Wales, Cardiff £6000
Newcastle University, Newcastle upon Tyne £3500
St James’s University Hospital, Leeds £3500
Birmingham Children’s Hospital £500
UKHCDO £1083
Haemnet £34000
British Society for Haemostasis and Thrombosis £4000
Total £57001

Payments to patient organisations
Rare Diseases UK - £8400 (unrestricted grant)
CLIMB - £4,000 (unrestricted grant)
British Dupuytren’s Society £11306.25 (website development)
Nebata - £500 (unrestricted grant)
Haemophilia Scotland - £675 (unrestricted travel grant)
UK Haemophilia Society - £5500 (website development; sponsorship of childrens’ support activities)
Total £30381.25

Payments made in 2013

Healthcare Professionals £39,260.50
Consultants (Including Advisory Boards) £30,722.92
Climb - Children living with Inherited Metabolic Diseases £3,390
Metabolics BE - Belgian Association of Metabolic Disease £1696.80
Oscar - Organisation for Sickle Cell Anaemia in research £2,022.25
UKTS - UK Thalassemia Society £750.00
The Irish Haemophilia Society  €81,500

Transparency

Sobi adheres to the ABPI and IPHA Codes of Practice in the UK and Ireland, and is committed to transparency by making public all funding and support by Sobi and healthcare professionals, healthcare organisations and patient organisations in the UK & Ireland.

Sobi has made the following payments, sponsorships and donations:

Payments made in 2015

 
Payments to patient organisations
 

UK Value

Cambridge Rare Disease Network (Donation)

£1,559

CLIMB National Information Centre for Metabolic Disease (Meeting sponsorship) £1,000
Genetic Alliance UK (Conference sponsorship and Patient support project)

£2,500


Leeds Teaching Hospital Charitable Fund (Meeting sponsorship)
£350
The British Dupuytrens Society (Corporate sponsorship) £31,600
The Haemophilia Society (Patient support survey, corporate sponsorship and young people's project)  £90,650
Total £127,659
   
Ireland  
Arthritis Ireland (Patient support project)

€1,000

Irish Haemophilia Society Ltd (Meeting sponsorship)

€6,574

Total

€7,574



Reference: NP-0698
Date of Preparation: 30th March 2015

Payments made in 2014

Fees paid to healthcare practitioners as consultants
£22400
Number of recipients 23

Sponsorship of individuals to third party meetings – registration fees, travel and accommodation
Total amount = £8538
Number of recipients = 22
Number of attendances = 25

Medical Education Grants and Services – Donations, grants and benefits in kind
Yorkhill Hospital Glasgow £2209
Evelina Children’s Hospital £2209
University Hospital of Wales, Cardiff £6000
Newcastle University, Newcastle upon Tyne £3500
St James’s University Hospital, Leeds £3500
Birmingham Children’s Hospital £500
UKHCDO £1083
Haemnet £34000
British Society for Haemostasis and Thrombosis £4000
Total £57001

Payments to patient organisations
Rare Diseases UK - £8400 (unrestricted grant)
CLIMB - £4,000 (unrestricted grant)
British Dupuytren’s Society £11306.25 (website development)
Nebata - £500 (unrestricted grant)
Haemophilia Scotland - £675 (unrestricted travel grant)
UK Haemophilia Society - £5500 (website development; sponsorship of childrens’ support activities)
Total £30381.25

Payments made in 2013

Healthcare Professionals £39,260.50
Consultants (Including Advisory Boards) £30,722.92
Climb - Children living with Inherited Metabolic Diseases £3,390
Metabolics BE - Belgian Association of Metabolic Disease £1696.80
Oscar - Organisation for Sickle Cell Anaemia in research £2,022.25
UKTS - UK Thalassemia Society £750.00
The Irish Haemophilia Society  €81,500